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Laura Rothenberg is 21 years old, but, as she
likes to say, she already had her mid-life crisis
a couple of years ago, and even then it was a few
years late. Laura has cystic fibrosis, a genetic
disorder that affects the lungs and other organs.
People with CF live an average of 30 years. Two
years ago, we gave Laura a tape recorder. Since
that time, Laura has been keeping an audio diary
of her battle with the disease and her attempts
to lead a normal life with lungs than often
betray her.
My So Called Lungs was produced by Joe Richman & Laura Rothenberg. Laura died on March 20th of 2003.
Links:
Cystic Fibrosis Worldwide
An international organization dedicated promoting access to care and education to those affected by CF in developing countries.
The Cystic Fibrosis Foundation
Find out more about cystic fibrosis -- causes, resources, treatment and more.
Radio Diaries
Read the transcript of My So Called Lungs, and find out more about Radio Diaries, the team which produced the documentary.
Books:
 Cystic Fibrosis: A Guide for Patient and Family
by: David M. Orenstein 1997
A one-of-a-kind guide offering clear explanations and real-world advice on cystic fibrosis and its management.
 Alive at 25: How I'm Beating Cystic Fibrosis
by: Andy Lipman 2002
An inspiring account of one young person and his struggle with cystic fibrosis.
 Breathing for a Living
by: Laura Rothenberg 2004
Laura's touching and insightful memoir.
 Cystic Fibrosis: Surviving Childhood, Achieving Adulthood
by: Wayne Kepron 2003
A comprehensive look at living with cystic fibrosis, including symptoms, teatment, and precautions.
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